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ACT Now to Help Unlock the Cure to Tuberous Sclerosis Complex 07:28

ACT Now to Help Unlock the Cure to Tuberous Sclerosis Complex

To donate to Unlock the Cure, please visit http://ow.ly/5nLM30f1dgv. Over the past several years, tuberous sclerosis complex (TSC) research has made s...


Published 2 weeks ago • Views: 1,094

by Tuberous Sclerosis Alliance
TS Alliance Patient-Focused Drug Development Meeting: Adults with TSC and/or LAM, Part 1 01:52:45

TS Alliance Patient-Focused Drug Development Meeting: Adults with TSC and/or LAM, Part 1

This video was recorded at the 2017 Externally-Led Patient Focused Drug Development Meeting on TSC and LAM on June 21, 2017, sponsored by the ...


Published 3 months ago • Views: 87

by Tuberous Sclerosis Alliance
TS Alliance Patient-Focused Drug Development Meeting: Adults with TSC and/or LAM, Part 2 01:22:09

TS Alliance Patient-Focused Drug Development Meeting: Adults with TSC and/or LAM, Part 2

This video was recorded at the 2017 Externally-Led Patient Focused Drug Development Meeting on TSC and LAM on June 21, 2017, sponsored by the ...


Published 3 months ago • Views: 47

by Tuberous Sclerosis Alliance
TS Alliance Patient-Focused Drug Development Meeting: Infants with TSC, Part 2 01:31:48

TS Alliance Patient-Focused Drug Development Meeting: Infants with TSC, Part 2

This video was recorded at the 2017 Externally-Led Patient Focused Drug Development Meeting on TSC and LAM on June 21, 2017, sponsored by the ...


Published 3 months ago • Views: 71

by Tuberous Sclerosis Alliance
TS Alliance Patient-Focused Drug Development Meeting: Infants with TSC, Part 1 01:57:18

TS Alliance Patient-Focused Drug Development Meeting: Infants with TSC, Part 1

This video was recorded at the 2017 Externally-Led Patient Focused Drug Development Meeting on TSC and LAM on June 21, 2017, sponsored by the ...


Published 3 months ago • Views: 94

by Tuberous Sclerosis Alliance
Resources for Families with Tuberous Sclerosis Complex & Infantile Spasms 00:03

Resources for Families with Tuberous Sclerosis Complex & Infantile Spasms

For more information, visit http://www.tsalliance.org/infantilespasms or call 1-800-225-6872.


Published 2 years ago • Views: 773

by Tuberous Sclerosis Alliance
Hopes for the Future of TSC and Infantile Spasms 03:05

Hopes for the Future of TSC and Infantile Spasms

For more information, visit http://www.tsalliance.org/infantilespasms or call 1-800-225-6872.


Published 2 years ago • Views: 924

by Tuberous Sclerosis Alliance
Treatment Options for Infantile Spasms in Tuberous Sclerosis Complex 03:36

Treatment Options for Infantile Spasms in Tuberous Sclerosis Complex

For more information, visit http://www.tsalliance.org/infantilespasms or call 1-800-225-6872.


Published 2 years ago • Views: 1,295

by Tuberous Sclerosis Alliance
What is Infantile Spasms in Tuberous Sclerosis Complex? 03:52

What is Infantile Spasms in Tuberous Sclerosis Complex?

For more information, visit http://www.tsalliance.org/infantilespasms or call 1-800-225-6872.


Published 2 years ago • Views: 2,974

by Tuberous Sclerosis Alliance
#IAMTSC Jared 00:33

#IAMTSC Jared

November is #epilepsyawarenessmonth, but did you know that tuberous sclerosis complex is #1 the genetic cause of #epilepsy? http://www.IAMTSC.org.


Published 2 years ago • Views: 674

by Tuberous Sclerosis Alliance
The 2015 #IAMTSC | We Are TSC 50K Crowdfunded Research Challenge 02:36

The 2015 #IAMTSC | We Are TSC 50K Crowdfunded Research Challenge

Tuberous Sclerosis Alliance President & CEO Kari Luther Rosbeck introduces the organization's exciting new crowdfunding project, which lets donors cho...


Published 2 years ago • Views: 467

by Tuberous Sclerosis Alliance
Why You Should Enroll in the REN Registry 00:02

Why You Should Enroll in the REN Registry

The Grandia family explains the importance of enrolling in the Rare Epilepsy Network. The Rare Epilepsy Network, or REN for short, is a collaboration ...


Published 2 years ago • Views: 153

by Tuberous Sclerosis Alliance
Enroll in the Rare Epilepsy Network Online Registry 00:48

Enroll in the Rare Epilepsy Network Online Registry

Kristin Frausto, whose child has tuberous sclerosis complex, discusses the importance of joining the Rare Epilepsy Network (REN) Online Registry to he...


Published 2 years ago • Views: 258

by Tuberous Sclerosis Alliance
#IAMTSC "Kimberly" PSA featuring Kate Flannery 00:31

#IAMTSC "Kimberly" PSA featuring Kate Flannery

IAMTSC is a campaign from the Tuberous Sclerosis Alliance to increase awareness about a rare genetic disorder called tuberous sclerosis complex (TSC).


Published 2 years ago • Views: 809

by Tuberous Sclerosis Alliance
#IAMTSC "Charlotte" PSA featuring Jim O 00:31

#IAMTSC "Charlotte" PSA featuring Jim O'Heir

IAMTSC is a campaign from the Tuberous Sclerosis Alliance to increase awareness about a rare genetic disorder called tuberous sclerosis complex (TSC).


Published 2 years ago • Views: 1,372

by Tuberous Sclerosis Alliance
#IAMTSC "Nami" PSA featuring Chris Hawkey 00:31

#IAMTSC "Nami" PSA featuring Chris Hawkey

IAMTSC is a campaign from the Tuberous Sclerosis Alliance to increase awareness about a rare genetic disorder called tuberous sclerosis complex (TSC).


Published 2 years ago • Views: 1,436

by Tuberous Sclerosis Alliance
#IAMTSC "Nic" PSA featuring Mo Collins 00:31

#IAMTSC "Nic" PSA featuring Mo Collins

IAMTSC is a campaign from the Tuberous Sclerosis Alliance to increase awareness about a rare genetic disorder called tuberous sclerosis complex (TSC).


Published 2 years ago • Views: 2,100

by Tuberous Sclerosis Alliance
#IAMTSC "What Is TSC?" PSA 01:06

#IAMTSC "What Is TSC?" PSA

IAMTSC is a campaign from the Tuberous Sclerosis Alliance to increase awareness about a rare genetic disorder called tuberous sclerosis complex (TSC).


Published 2 years ago • Views: 9,784

by Tuberous Sclerosis Alliance
#IAMTSC "Tony" PSA featuring Alex Skuby 00:31

#IAMTSC "Tony" PSA featuring Alex Skuby

IAMTSC is a campaign from the Tuberous Sclerosis Alliance to increase awareness about a rare genetic disorder called tuberous sclerosis complex (TSC).


Published 2 years ago • Views: 895

by Tuberous Sclerosis Alliance
#IAMTSC "Tommy" PSA featuring Julianne Moore 00:31

#IAMTSC "Tommy" PSA featuring Julianne Moore

IAMTSC is a campaign from the Tuberous Sclerosis Alliance to increase awareness about a rare genetic disorder called tuberous sclerosis complex (TSC).


Published 2 years ago • Views: 1,513

by Tuberous Sclerosis Alliance
  • About:

    Joined 7 years ago | 2011-02-18...

    The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis complex while improving the lives of those affected.

    Tuberous Sclerosis Alliance

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